ALS Ice Bucket Challenge Progress
We are now hosting Virtual Support Group Meetings through Zoom, a reliable video platform, to accommodate and allow more accessibility for Michigan Patients and their Caregivers. You can attend these meetings using your computer, tablet, or smartphone. Please take a few minutes and register for Zoom *HERE* and familiarize yourself with the platform prior to your first meeting. Please use the links listed below to register, or contact Tanya directly at (616) 276-3383 or by email, tanya.peterson@als.org. Once registered, and to protect the groups privacy, you will recieve the Zoom meeting invite and login details.
The ALS Caregiver Lab(s) are workshops created for caregivers caring for people with ALS. The program is designed to provide the education and training caregivers need to use equipment like Hoyer Lifts, communication devices, and respiratory equipment to keep their loved ones comfortable as they help them perform the basic daily tasks.
Topic: Speech, Communication, & Voice
Date: March 18, 2023
Time: 10:00am-12:00pm
Location: Raleigh J. Finkelstein Hall, Grand Valley State University
500 Lafayette Ave. NE
Grand Rapids, MI 49503
Please join us for this Caregiver Lab with speakers Beth Macauley, Speech & Language Pathology Professor at Grand Valley State University and Joel Allchin, Michigan Solutions Consultant for Tobii Dynavox. Beth will review the no-tech and low-tech options for communication for persons living with ALS and the role of speech-language pathology. There will be an opportunity throughout this lab for caregivers to see/create no-tech communication options and for SLP students to assist with these low-tech options. Joel Allchin will discuss high-tech speech devices and options, as well as voice and message banking, in more detail. There will be an opportunity for all caregivers throughout this lab to experience and try out various communication devices and have that hands-on experience.
If you have any interest in attending, please reach out to Tanya Peterson, Director of Care Services by phone (603) 396-9034 or email tanya.peterson@als.org with your name, address, and phone number.
This group is designed for those diagnosed with ALS within their first year of receiving that diagnosis. Please feel free to join on these calls monthly as there will be different topics and resources shared to help support you during your journey of ALS.
Audience: Those newly diagnosed with ALS, caregivers, and family members
Occurence: Third Thursday of the month from 1:00 – 2:00 PM
Zoom Meeting Link will be sent after you register, and again prior to the meeting.
January 19, 2023 – 1:00-2:00 p.m.
February 16, 2023 – 1:00-2:00 p.m.
March 16, 2023 – 1:00-2:00 p.m.
April 20, 2023 – 1:00-2:00 p.m.
May 18, 2023 – 1:00-2:00 p.m.
June 15, 2023 – 1:00-2:00 p.m.
July 20, 2023 – 1:00-2:00 p.m.
August 17, 2023 – 1:00-2:00 p.m.
September 21, 2023 – 1:00-2:00 p.m.
October 19, 2023 – 1:00-2:00 p.m.
November 16, 2023 – 1:00-2:00 p.m.
December 21, 2023 – 1:00-2:00 p.m.
Occurrence: The 2nd Tuesday of each month, from 1:00 – 2:00 p.m.
These Meetings are specifically dedicated to those living with ALS.
Zoom Meeting Link will be sent after you register, and again prior to the meeting.
January 10, 2023 – 1:00-2:00 p.m.
February 14, 2023 – 1:00-2:00 p.m.
March 14, 2023 – 1:00-2:00 p.m.
April 11, 2023 – 1:00-2:00 p.m.
May 9, 2023 – 1:00-2:00 p.m.
June 13, 2023 – 1:00-2:00 p.m.
July 11, 2023 – 1:00-2:00 p.m.
August 8, 2023 – 1:00-2:00 p.m.
September 12, 2023 – 1:00-2:00 p.m.
October 10, 2023 – 1:00-2:00 p.m.
November 14, 2023 – 1:00-2:00 p.m.
December 12, 2023 – 1:00-2:00 p.m.
Occurrence: The 4th Tuesday of each month, from 1:00 – 2:00 p.m.
These meetings are specifically dedicated to the Caregivers of those living with ALS.
Zoom Meeting Link will be sent after you register, and again prior to the meeting.
January 24, 2023 – 1:00-2:00 p.m.
February 28, 2023 – 1:00-2:00 p.m.
March 28, 2023 – 1:00-2:00 p.m.
April 25, 2023 – 1:00-2:00 p.m.
May 23, 2023 – 1:00-2:00 p.m.
June 27, 2023 – 1:00-2:00 p.m.
July 25, 2023 – 1:00-2:00 p.m.
August 22, 2023 – 1:00-2:00 p.m.
September 26, 2023 – 1:00-2:00 p.m.
October 24, 2023 – 1:00-2:00 p.m.
November 28, 2023 – 1:00-2:00 p.m.
Location:
Tanglewood Park
560 Seminole Road
Muskegon, MI 49441
January 25, 2023 | 11:00am-12:30pm - CANCELED DUE TO WEATHER
March 22, 2023 | 11:00am-12:30pm
May 24, 2023 | 11:00am-12:30pm
July 26, 2023 |11:30am-12:30pm
September 27, 2023 | 11:00am-12:30pm
The ALS Association, Michigan Chapter will hold various open houses and meetings throughout the year in different towns located in Northern Michigan. The purpose is to connect with those living in more remote areas to share services, programs, and resources available to those with ALS and their caregivers through the ALS Association directly or through other resources and programs accessible to them in their community.
Date: Thursday, June 15, 2023
Time: 2:30-4:30 pm
Location: Quality Inn & Suites, 13954 State Hwy M-28, Newberry, MI, 49868, US
*Rooms are available at 25% off to attendees
Questions?
Contact: Tanya Peterson, Director of Care Services
Email: tanya.peterson@als.org
Direct: (616) 276-3383
